ECHDO

Bundesverband Herzkranke Kinder e.V. (BVHK)
Hermine Nock 
Kasinostr.66
D- 52066 Aachen (Germany)
Phone: +49 (0) 241 - 912332
bvhk-aachen@t-online.de
www.bvhk.de

AUSTRIA

Name: Herzkinder Österreich 

Contact:  Herzkinder Österreich Kinderspitalstr. 1/30 A-4020 Linz

www.herzkinder.at

Petra Sitter: p.sitter@herzkinder.at

Mobile: +43-664-122 14 71

BELGIUM

Name: Hartekinderen vzw
Contact: Hartekinderen vzw
Mr. Peter V/d Broeck 
Elzenlaan 20
2390 Malle 
Belgium
www.hartekinderen.be 
Email: info@hartekinderen.be

BULGARIA

Name : Association „Child’s heart“
Contact: Mrs. Mila Markova
Sofia 1609 
3 Lakov Kraikov Str. 

www.childsheart.eu
Email: as_childs_heart@yahoo.com
Phone: + 359 2 953 28 66

CZECH REPUBLIC

Name : Srdickari - Czech Association for CHD children and their parents
Contact: Srdickari
Za Kovarskym rybnikem 267
149 00 Praha 4 
www.srdickari.cz

Email: info@srdickari.cz
Phone (mobile): +420 603 262 405

CATALONIA

Name : AACIC
Contact: NENS I JOVES AMB CARDIOPATIA
www.aacic.org

Email: info@aacic.org
Phone: + 93 458 66 53

CYPRUS

Contact: Syndesmos Goneon kai Filon kadiopathon Paidion 
2081 Akropolis, Nicosia
Cyprus 
www.pediheart.org.cy

Email: pediheart@cytanet.com.cy 
Phone: +2231 51 46 96

DENMARK

Name: Hjerteforeningens borneklub 
Contact: 
Hjerteforeningens borneklub
Helle Meinhardt
www.hjerteforeningen.dk

Email: naestformand@hjertebarn.dk

ESTONIA

Name: MTÜ Südamelaste Tugiühing 
Contact: MTÜ Südamelaste Tugiühing
Nurmenuku 16 Keila
Estonia, 76609 
www.sydamelaps.ee

Email: river.tomera@gmail.com

FRANCE

Name: Association nationale des cardiaques congenitaux (ANCC)
Contact: ANCC 
Château des Cotes
F - 78350 – Les Loges en Josas
France 
www.ancc.asso.fr
Email: masseronmarie@orange.fr

FINLAND

Name: Sydänlapset ja -aikuiset ry
Contact: Sydänlapset ja – aikuiset ry 
Mrs. Katja Laine 
Oltermannintie 8
00620 Helsinki, Finland 
www.sydanlapsetjaaikuiset.fi

katja.laine@sydanlapsetjaaikuiset.fi
Mobile: +358 (0) 44 2727 717 

GERMANY

Name: Bundesverband Herzkranke Kinder e.V. 
Contact: 
Kasinostr. 66
52066 Aachen, Germany

www.bvhk.de
Email: bvhk-aachen@t-online.de
Phone: +49- (0)241-91 23 32 

GREAT BRITAIN

Name: Children`s Heart Federation
Contact: Mrs. Anne Keatley-Clarke
2-4 Great Eastern Street, London EC2A 3NW
Great Britain 

www.chfed.org.uk
Email: info@chfed.org.uk
Phone: +44 (0)20 7422 0630 

GREECE

Name: «Child’s Heart»
Contact: 104 Aiolou Str.
10564 Athens
Greece 

www.kardiapaidiou.gr
Email: kardiap@yahoo.gr
Phone: +30-2103218488 or +30-2103253876

HUNGARY

Contact: Mr. Ferenc Iker
Email: iker.ferenc@axelero.hu

ICELAND

Name: Children’s Heart Foundation in Iceland Neistinn
Contact: Sidumuli 6
108. RVK 
Iceland 

www.neistinn.is
Email: gudrun@hjartaheill.is

IRELAND

Name: Heart Children Ireland
Contact: Margaret Rogers CEO

www.heartbeatni.org.uk

www.heartchildren.ie 

Email: heartchildren@eircom.net

ITALY

Name: AICCA (Associazione Italiana dei Cardiopatici Congeniti Adulti) Italian GUCH Association
Contact: Via Pascoli, 37
20097 San Donato Milanese, MI
Italy 

www.aicca.it
edward.callus@gmail.com
Phone: +39 02 5277 4677

LITHUANIA

Name: Vaiko Širdies Asociacija
Contact: Minijos g. 1 Kartenos mstl. Kretingos r.
LT-97340, Lietuva

www.vaikosirdis.lt
Email: vaikosirdis@gmail.com
Phone: +370 68258837

LUXEMBOURG

Name: Lux Cordis asbl
Contact: 24, Wakelter
6928 Oberanven
Luxemburg

www.luxcordis.org
Email: Info@luxcordis.org 
Phone: 0352-621-656-944

NORTHERN IRELAND

Name: Heartbeat Northern Ireland
Contact: Mr. Irwyn McKibbin 

www.heartbeatni.org.uk
mckibbin@btinternet.com

NETHERLANDS

Name: Patiëntenvereniging Aangeboren Hartafwijkingen (PAH)
Postbus 1671
3600 BR Maarssen
Netherlands 

www.aangeborenhartafwijking.nl
Email: info@aangeborenhartafwijking.nl 
Phone: +31 880063600

NORWAY

Name: Foreningen for hjertesyke barn FFHB
Contact: FFHB
Postboks 4535 Nydalen
0404 Oslo
Norway

www.ffhb.no
ffhb@ffhb.no
Phone: +47-22799450

POLAND

Name : Fundusz Serce Dziecka” The Dina Radziwillowa “Child`s Heart” Foundation, Poland 
Contact: Relaksowa 58 str. 
02-796 Warsaw, Poland 
www.sercedziecka.org.pl
fundacja@sercedziecka.org.pl 
Phone: 0048 / 601-228-073 

ROMANIA

Name: My child – My heart” Association
Contact: Silvestru street 36
Iasi town
Romania
respectmedia@gmail.com
Phone: +40-730800314

SLOVENIA

Name: Društvo Srčnih Otrok
Contact: Britof 128
4000 Kranj
Slovenia 

www.srcki.si
Email: info@srcki.si 

SPAIN

Name: Fundacion Menudos Corazones
Contact: C/Valdesangil
19-4° IZDA
28039 Madrid
Spain

www.menudoscorazones.org
informacion@menudoscorazones.org 
Phone: +34 -91 373 67 46

SWEDEN

Name: Hjärtebarnsföreningen
Contact: Box 41
450 71 Fjällbacka
Sweden

www.hjartebarn.org

www.hjartebarnsfonden.org 
peter.nordqvist@hjartebarn.org
+46-(o)8442-4650

GUCH UNITED KINGDOM

Name: Grown up Congenital Heart Patients Association (GUCH PA)
Contact: 
Paul Willgoss

Email: paul.willgoss@btinternet.com
www.guch.org.uk
Phone: +44-1473 252 007

JEMAH (GERMAN GUCH)

Name: Bundesvereinigung JEMAH e.V.
Contact: Geschäftsstelle 
c/o Heike Appold
Bergstr. 16
97320 Mainstockheim
www.JEMAH.de
Email: info@jemah.de
Phone: +49-(0)9321-268905

ROMANIA (GUCH)

Name: Fundatia Pentru Protectia Adultilor Cu Boli Cardiace Congenitale
Contact: No. 17th Randunelelor Str., Sector 3
Bucharest, Romania
www.protcard.org
Email: contact@protcard.org 
Phone/Fax: +40 -21 3114938